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Bioinformatics Training and Education Program

january, 2021

08jan12:00 pm1:00 pmPrivacy concerns on sharing clinical data for research: Key considerations and how to address themNIAID Data Science Seminars


Event Details

Data sharing is essential for the acceleration of science, but privacy concerns need to be addressed before clinical data can be properly shared for research. I will briefly introduce the main issues in clinical data sharing, as perceived by researchers and patients, and describe how a combination of privacy technology (i.e., methods that make it difficult to identify a specific patient whose data are going to be shared) and policy can help strike a balance between data utility for researchers and privacy protection for the patient and healthcare institutions.


Lucila Ohno-Machado, MD, PhD, MBA
Professor of Medicine
Chair, Department of Biomedical Informatics
Associate Dean for Informatics and Technology
University of California San Diego

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(Friday) 12:00 pm - 1:00 pm




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