Topic: Clinical Research

Abstract:
Data sharing is essential for the acceleration of science, but privacy concerns need to be addressed before clinical data can be properly shared for research. I will briefly introduce the main issues in clinical data sharing, as perceived by researchers and patients, and describe how a combination of privacy technology (i.e., methods that make it difficult to identify a specific patient whose data are going to be shared) and policy can help strike a balance between data utility for researchers and privacy protection for the patient and healthcare institutions.

Speaker:

Lucila Ohno-Machado, MD, PhD, MBA
Professor of Medicine
Chair, Department of Biomedical Informatics
Associate Dean for Informatics and Technology
University of California San Diego

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Register now and join us via Webex.

Speaker:
Noémie Elhadad, Ph.D.
Columbia University

In this talk, Dr. Elhadad will discuss how artificial intelligence and informatics improve patient-centered healthcare. She will show how patient-record summation tools can help clinicians make sense of seemingly overwhelming amounts of patient data at the point of care, and how “mHealth” tools can be used to help patients understand and manage healthcare decisions.

About the Data Science Seminar Series

The National Cancer Institute’s (NCI) Center for Biomedical Informatics and Information Technology (CBIIT) Data Science Seminar Series presents talks from innovators in the data science and cancer research communities.
To view upcoming speakers or view recordings for past presentations, visit Data Science Seminar Series.  Follow the conversation @NCIDataSci and #DataSciSeminar. For more information about NCI’s Center for Biomedical Informatics and Information Technology (CBIIT) visit: datascience.cancer.gov